It’s hard to attract research funding for this complex disease, with a mountain of patient experience going undocumented

Many people are grieving the untimely death of Tessa Jowell. She was an exceptional person. Tony Blair confirmed the impression she gave to those of us who only knew her from afar: “Tessa had passion, determination and simple human decency in greater measure than any person I have ever known.”

For me, her death is personal for another reason. We found ourselves in the same elite club.

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Read More Like Tessa Jowell, I have a brain tumour. I hope her death inspires new research | Jessica Morris

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